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Disabilty as talent: The perfection of the broken
Posted By Joe Weil On December 14, 2011 @ 9:00 am In Society | No Comments
Maybe my mom was right.
I have an older brain damaged brother, Peter. In 1953, a small pox vaccination failed to localize and shot up to his brain. Encephalitus (swelling of the brain tissue) and a high fever ensued. They were not able to get the swelling or the fever down in time to prevent extensive brain damage. The convulsions Peter went through afterwards were damaging his brain further so, in 1955 , Peter underwent a hemispheral removal of most of the left side of his brain. This was done in an attempt to stop the convulsions and with the hope that his right brain would assume and compensate for his left. He was one of the first people to undergo this operation. For a time it was successful, but then the convulsions returned, each convulsion wreaking havoc, and, in the 1970′s, Peter suffered encephalitis again. This time, he went into a three year light coma. When he woke from the coma, he could no longer sing our family.
Sing our family? Yes. Peter, could only say a few words: “What” was his name for my mother (because she was always calling out to him : “what, Peter?”). Water was close to “what” but distinct enough. After that, he did not speak accept through songs. Peter loved bright lights, loud sounds, and most of all, music. He loved when my parents yelled, and unlike us, would laugh and sing “Why Do Fools Fall in Love.” My mother played records to calm him, and he could sing the words. More importantly, he could modify words.
We all kow the parts of the brain that sing and those that speak aloud are not the same. There are hundreds of stories about stammers and stutterers with the voice of angels. But Peter took this difference one step further. He changed the lyrics slightly to identify me, showing some sort of brain function that could recognize syllable counts and accents. He had a different song for everyone in the family.
“Oh Johnny, Oh Johnny, How you can love,” for my brother John.
“All day, all night Mary Ann,” for my sister Mary .
He had a song for different behaviors: “Why do fools fall in Love?” for when my parents fought.
“It’s another be good to mommy day”, for when he threw dinner plates, or ripped down curtains (he was hyperactive).
But perhaps the most interesting song was the one he modified for me: “Daisy, Daisy.” The song lyrics:
Daisy, Daisy, give me your answer, do.
I’m half crazy over the love of you.
He changed Daisy to Joseph. This meant his brain was capable of substitution, even of improvisation (they say he has the mind of a six month old). He would sing this on occasion, belting it from the hopsital bed we had set up for him in the bedroom. He sang these songs through out the day. it was his way of station identification. It was his family. For the dog he sang “How much is that doggy in the window.” Our dog, Peppy, was wonderful with Peter, always understanding, even when Peter would be rough with him. Peppy saved my brother’s life by waking my mother up while Peter was in the midst of a terrible convulsion.
So my mom thought about all this, and until the day she died, she believed that certain great abilities, even certain forms of genius, might be the result of a re-routing of the brain from an accident/disability.In short, she thought all genius was a form of brain damage. She thought genius and creativity were compensatory or re-routed adjustments of a broken self. She said: “your brother is a marvel. You should remember that at the same time you remember he is brain damaged. You should remember how amazing he is.”
Here is an excerpt from an article in a Harvard Medical Journal on how many great artists might have suffered from an ocular disability of depth perception often known as lazy or wandering eye causing “stereo blindness”, and how the lack of one form of depth perception might have been an advantage to their use of other forms of persepective, shading, and three dimentionality. I just think this stuff is interesting. We want to fix everyone and reform everything–especially if it works in a way we don’t approve. We say we love mystery, but we persecute and taunt those who come to greater truths by defective means. This article ought to make us at least consider that what we disparage, may hide a remakable gift. The stones the builders reject might become the cornerstone:
Sleight of Sight
It seems logical that artists, like baseball players, would find any visual defect detrimental to their work. Yet, when we looked at photographic portraits and compared the position of the light reflex in the eyes of 53 famous artists, we found a surprising proportion—28 percent—with misaligned eyes, which would suggest stereoblindness. The artists with ocular misalignment included Marc Chagall, Edward Hopper, Gustav Klimt, Jasper Johns, Frank Stella, Man Ray, Chuck Close, Thomas Moran, Willem de Kooning, Roy Lichtenstein, Alexander Calder, Robert Rauschenberg, N. C. Wyeth, Andrew Wyeth, and perhaps even Pablo Picasso.
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